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A Little Bit of Normal

We’re enjoying “a little bit of normal” around here lately! Last week all 3 kids attended a vacation Bible school at a local church, from 9am-3pm. All the kids did amazingly well, especially Picasso. He earned all the stickers that they were giving as rewards. His teacher had nothing negative to say when I asked about his behavior, there were no time-outs of which I was aware. He succeeded in a week of structured activities with kids his age, at a location with which he was only moderately familiar. This is a huge step for us! Mozart & our Princess did well, too - I had no question about Mozart’s ability to attend the week-long programs. He knew some kids from years before and had a great time. Our Princess did well, and I think it was harder for me to let her go, than for her to actually go. Her teachers were some people I knew, so that helped (helped ME!), and I knew she would be well-cared for.Our normalcy with Picasso is continuing into this week. Now, I’m aiming to be open and honest, for others going through similar situations, without divulging too much of anyone’s privacy. So you have probably all seen some typically-developing 7-year olds, and you know that sometimes, the grosser a conversation, the more they like it. Well, that seems to be holding true for us with Picasso this week. And as much as I personally do not care for gross conversations and discussion of bodily functions, I do recognize that it’s normal and so I’m really happy when some “normal” passes through our house! I’m trying to make sure that we don’t go overboard in “bathroom words” or disgusting discussions. But it’s funny to me to hear this, and to be a little grateful for it!Having said all this, and basking in some normalcy, we are beginning to tighten up the reigns a little on the house art - you know, the art ON the house. We’re going to be working with him to understand and locate the appropriate places to draw/write/color. Due to his developmental delays, he does not always act his age, and rightfully so. However, we seem to have turned a corner and I think we’re at a place where we can impose some regulations on where he’s allowed to draw. Until now, the house art seems to have occurred in a moment when he does not have words to use, and so he will use the art as a way to alleviate his frustrations. But since he is making great strides developmentally, we are going to attempt to take some control of the house art. We’re looking for some cool options to give him other outlets to draw - wall paper books, or paper that has room to draw and write, so he can begin to make his own book. The sky’s the limit when it comes to possibilities I’ll consider!

So take a minute, sit back, breathe deeply and enjoy this moment with us! We are SO amazed to be feeling normal right now!

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The Art of Conversation

If you know us at all, even a little, even just a tiny bit, chances are you’ve heard of some of the random conversations that occur within our family. And for the record, there are many more that you haven’t heard about for one reason or another.Picasso has speech therapy, as well as social skills therapy, to help him improve his conversation skills (among other things). He is quite the conversationalist when talking with someone he knows. He can often stay on topic, especially if he’s interested. Turn-taking in a conversation can be difficult as he has to process what he’s heard and then figure out how to respond based on what the other person has said and based on what he wants to say, all the while realizing he needs to stay on topic. Sometimes all of that is just too much for him, and he just doesn’t respond. Or, he resonds later - well after the fact - once he’s figured out a way in which he can respond.I had all 3 kids at Target today, picking up some Father’s Day cards (because I’m behind again…sigh!). I was hoping to find a movie that the kids could get for Tim and be able to watch with him. That’s kind of a tough one, when you have 3 kids of varying ages & interests, and finding a movie that’s appropriate for all. But - we found one. (Won’t say which one since it’s a gift.) :)

We passed by a shelf and Picasso saw Transformers 2 and wanted to get it. I told him that I didn’t think he was ready to see it yet, and his sister certainly wasn’t ready to see it, so it probably would not be the best bet for a movie for Dad. Picasso was frustrated and I was trying to move him along down the row so that maybe he could move past wanting that movie - ’cause, out of sight out of mind, right? Ha!

No sooner do we get past Transformers 2, and on to look at what might be more suitable movies, than we happen to cross paths with an employee. Now, Target prides themselves on having excellent customer service, and I would agree. After today, I would have to agree even more. I am sure - positive - that this man did not plan on a conversation with Picasso today, or even on having a conversation similar to this today. But he was helpful, didn’t undermine my opinion, talked on a level appropriate to the person he was helping, and was kind about the whole matter. The employee was a man who was probably in his 40s, and looked to be training another man.

So I said no to Transformers 2 for Tim, I ushered Picasso away from the movie, down the row, and there’s the employee. Do I need help? No, I’m just looking, thanks!

Then, I hear it. Music to my ears. A proud moment to be shared with Picasso’s therapist.
1. He engages in conversation.
2. He engages in conversation with a stranger.
3. He engages in conversation with a stranger over a hostile (in his mind) topic.
4. He listens to the other person’s perspective.
5. He accepts the answer given by the stranger and the conversation is (mostly) over.

Here’s what was said:
Picasso: “Excuse me, Sir?”
Employee: “Yes?”
Picasso: “Why is Transformers 2: Revenge of the Fallen rated PG-13?
Employee: “I think there’s a lot of violence in the movie, and things get blown up and vehicles crash - stuff like that.”
Picasso: “But I really want to see it.”
Me: (chiming in just to be sure the employee doesn’t promise something I don’t intend to do): “Maybe when you’re a little older.”
Employee: “I don’t think you’re quite old enough yet. It’s really too much violence for young kids, and it’s kind of scary.”
Picasso: “Have you seen it?”
Employee: “No, I didn’t watch it. I’ve only heard about it. But maybe when you’re older, you’ll be able to see it.”
Me: “Come on, pal, let’s go find a movie for Dad. Thank you, Sir.”
Picasso: (more to himself, but loud enough for us all to hear) “I still want to watch it. I wish it wasn’t PG-13.”

Picasso took FIVE turns at a conversation, kept it ALL on topic, responded to someone else who was talking on topic, and based his own responses to what the other participant had to say. There was no argument, just genuine listening and conversing.

Maybe this isn’t a big deal to you, but for us, it’s huge! Yes, Picasso looks so normal on so many levels and it’s hard to recognize that conversation is not a strength of his because he speaks well (and often!). But when something like this happens, we realize that he does lack in certain areas, but that with some help, we’re working on these issues, and gaining some ground!

Conversation is more than just random talking - and we’re getting there!

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Big Things are Happening!

Big things are happening in our family - seems everyone is growing up all at once!
Today was the last day of preschool for our Princess! She has had a great year and has really grown a lot! I think she’ll miss her friends, but she loves spending time with her big brothers, so I’m sure she’ll enjoy hangin’ out with them this summer!

Picasso lost his second tooth today! His first tooth came out on Mozart’s and my birthday. Guess he wants to be consistent and lose his teeth on special days in order to be part of the celebration!

Mozart is old enough to attend youth group and had a great time last week with the “big kids”. The other two are slightly jealous that they don’t get to go with him.

The boys’ school officially ends next Wednesday. I’m having trouble staying motivated for one more week, myself, so I can imagine they’re ready to be done! They have done well, and they each only have a little bit of their course work that they need to finish.

There is a lot going on right now; I won’t try to deny that. Mozart has a piano recital Friday night ~ I’m really looking forward to that! He’s amazing when it comes to piano! We have therapies, a couple of vacation bible school programs coming up, and various family activities and church activities. However, I feel like our family is in a really good place right now. Everyone is doing well, the boys have gained more independence with schoolwork as they’ve gone through the year, we’ve seen a lot of progress in everyone’s efforts this year. We’re counting the blessings!

When I stand before God at the end of my life, I would hope that I would not have a single bit of talent left, and could say, “I used everything you gave me.” ~Erma Bombeck
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Party for Picasso

Today we had Picasso’s birthday party - his first ever party to which he could invite friends. We’ve been preparing for the party for about 2 months and we’ve been discussing it with Picasso, along the way.Picasso needs structure and minimal free time when he has a group activity to attend. Knowing this, I found a company that would come in and do science experiments. My plan was to have the kids arrive 30 minutes before Mad Science of West New Jersey arrived to do their science show. During that time, we’d have cake & ice cream. Then the science show would be about an hour, after which Picasso could open presents. The schedule ended up running well and left very little time for kids wandering off or getting bored.Picasso chose his friends for the party, and invitations were sent. I viewed the Mad Science website with him several times, in preparation for the party. I asked a friend to make a cake (she did an AWESOME job, didn’t she? The cake also tasted delicious!) - everything was set. We continued to check the date on the calendar, review plans for the party - everything we could think of to prepare Picasso.

It was finally time for the party. The party was at our church, and just before friends began arriving, Picasso was supposed to put back a little bike he’d been riding. I was confident in our preparations, the cake arrived and looked amazing, we had dry ice on the tables - everything for a fun, science-themed party.

I had prepared for everything - everything - except how to manage this outburst. And then, it happened. My dear boy had a meltdown. Despite all our preparations and planning and his excitement for the party, the moment had come and he was hiding in a back room. I went to get him, thinking he was just finishing up putting the bike away. What I walked in on was, “I’m NEVER coming out and you CAN’T make me!”

These outbursts happen from time to time and I can usually help him get over the anxiety quickly. The difference, though, is that he is not usually the center of attention - usually it happens when it’s a party for a friend, or at church, and I can remove him from the situation. Today, though, was his moment to shine and he was screaming at me in the back room. I was scared - scared that he would get hurt; scared that he might not come out of the room; scared that he *would* come out of the room and continue screaming and possibly start destroying things; scared that we might have this party without him while he & I hung out in the back room.

I decided to give him some time and walked out of the room. A good friend, who really understands my guy, walked by. In a panic, I told her what was going on. She immediately prayed for us - for the party, for our guy, for his anxiety. I began to feel more peaceful but still wasn’t sure what would happen. Several different people tried to coax him out of the room, inviting him to open a gift, see his friends, come out and be on the outside edge of the room - all to no real avail. He would come out, scope out the room, and walk back in again. Finally it was time to light the candles. He didn’t care. I asked, “Who should I get to blow out the candles? And if you don’t come out, you’ll miss the dry ice bubbling up from inside the cake.”

He came out. He came over to the cake table, thought the dry ice in the cake was the coolest thing, and the rest of the party was a huge hit.

The cake, with dry ice added for bubbly effect

The science company arrived, did an amazing show, and finished with a rocket launch. The rocket launch was one of the most amazing things I’ve ever seen. The folks from the science show said they’ve never seen a rocket that launced that high, ever before. We launched it from the back of the parking lot at our church, it went up into the sky, over the church and onto the road in front of the church. Thankfully, it was retrieved and Picasso got to keep the rocket.

We finished with presents and I must say, he got some fun gifts - looking forward to some Nerf wars, outdoor summer fun, Lego & Bionicle creations, science experiments and great books to read!

Looking back, I’m glad we had a group come in to run the party - it was a distraction that worked well because it was a new group that no one had seen before, and the experiments were fun. I’m glad I had a friend make the cake because she did an excellent job and I wouldn’t have been able to create something so fun!

The best part of the day, for me, was having a party with people who understand our son’s needs and were willing to walk through this day with us. I know that everyone else would have had a great time, even if I had spent the morning in the back room with Picasso. But our friends and family were sympathetic & helpful. Most of all, though, I personally felt at ease saying, “We’re not doing ok right now.” That’s a big step - to have to be vulnerable in front of people - to have them see the tough side of whatever issues we’re dealing with. I didn’t feel uncomfortable or defeated to have to admit that this might be too much for the birthday boy. I was glad, and relieved, when he finally did come around, blew out his candles and had a blast!

Happy birthday, Picasso!

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Haircut

Picasso needed a hair cut, so we ventured out this morning. Usually we go to our awesome barbers in town, but we were out running other errands and so we just stopped at a random place.Being as Picasso is now 7 years old, and was willing to walk to the chair on his own, I just sat where I was and waited: Would he be ok? Would the stylist be ok? Would Picasso communicate with her? Would she ask me to come over?

Then the questions began: “How would you like your hair cut?” I waited, hoping he would answer, and that his answer would be something I was okay with, so that we wouldn’t be arguing over his hair cut. He said, “Oh, just a little trim.” The stylist glanced over at me and I nodded to let her know that was fine with me. They chit-chatted during his trim and I began to hear his “trigger words” - words that let me know he’s not ok, or that he’s uneasy in the situation & anxiety is creeping in, or that he’s just about had enough. I waited silently since he wasn’t calling me and the stylist seemed to be managing just fine.

Picasso does and says funny things sometimes, and I got to hear another this morning. As the stylist was trimming his hair, he looked in the mirror and studied his hair carefully. Then he asked, “Could you straighten this part here, please?” I almost fell on the floor - he was asking very seriously, but (and maybe this is something only I notice, as Mom) I could tell he was being a little funny - acting more grown up to see how someone might react. On the other hand, he took responsibility for his own hair cut and wanted to make sure HE left feeling good about his own haircut. The stylist was giggling and assuring him that yes, she would check that spot, which she did.

After his hair was sufficiently checked and straightened, she tried to comb it over to the side so it looked “extra handsome”. No matter what she used - comb or fingers - he would go and part his hair in the middle. Think, Alfalfa from the Little Rascals!

Picasso makes a cute little rascal!

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