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My Own Worst Enemy

I came across Bloggy Moms a few months ago, but haven’t had much time to check out the site and many fun things they have over there. They have a list of writing prompts, which I love because some days it’s hard to think of more than “Eat breakfast” or “No, that’s addition, not subtraction.” So I’m jumping in with the Writing Prompt for today, February 29th. (Also, I feel compelled to wish you a Happy Leap Day.)
Today’s prompt is “I am my own worst enemy…”

I am my own worst enemy…


When it comes to making To-Do lists.

Which is why I didn’t write to yesterday’s blog prompt of “My Life’s Agenda”.

To me, that reads as “My Life’s To-Do List”


And I don’t make To-Do Lists.

I make “Have Done” Lists.
I gave up To-Do lists, with only a few exceptions. The only times I usually make To-Do lists are when I’m planning a major house cleaning, and then I go room by room and make checklists of all that I want to get done in those rooms. However, I never actually get it all done, despite my lists. So I don’t even do that too often. I mean, look around, we can all see what needs cleaned, right? So if I don’t make a list, then I have succeeded at what I did get done, and I did not fail at completing my list.
I also make To-Do lists for those days that are so hectic that it matters *when* you breathe. You can’t breathe at the wrong moment because there’s literally not time in that moment. Ok, so I’m exaggerating just a little. You have those days, too, right? RIGHT? They’re pretty rare here, but they do happen. On those days I jot down the important things that absolutely must get done, appointments we have to get to, etc., so that I don’t forget something. ‘Cause at any given moment, one kid may or may not be dressed, one may have forgotten to brush teeth despite a few reminders, one may be engrossed in a book and forget to pick up the backpack. You know how that goes. So I make the list to remind myself of where I’m supposed to go and what I’m supposed to do, so I don’t forget something important.
But, in general, I don’t make To-Do lists. Instead, I make Have-Done lists on occasion.
Do you get to the end of certain days and wonder, “What on Earth did I do today?” Yeah, me too. Those days frustrate me. I find myself feeling like a big, gigantic failure because my mental To-Do list (you know you have one, too) didn’t get accomplished.
I mean, I home school three kids, shuttle one to and from therapies - and the other 2 come along because, well, that’s how it works out in our home. Additionally, there are meals to cook, laundry to be done, piano practice (times 2 come the fall!), all sorts of correspondence with teachers and family and friends, writing projects, church activities and responsibilities, various appointments.
So at the end of those days - those crazy, frustrating days, I make Have-Done lists.
And -
I. Count. Everything.
Every little thing I can remember, goes on the list for that day.
So my Have-Done list might look like this:
*drink coffee
*make breakfast x4
*clean up dishes
*start schoolwork
*get kids to online classes
*put in laundry
*finish eating my breakfast
*make snacks x3
*monitor free time
*return 3 emails
*get boys back to schoolwork
*read with daughter
*answer email from teacher
*text Hubby for something I forgot at store
*keep an ear on the online class while preparing lunch
*prepare lunch x4

And that’s only up to lunch time.
And that list reflects the REAL productivity in my day, rather than making a list of 10 items and only crossing off 3 of them.
Because, when I make To-Do lists and only get them partway done, I feel like I was a failure for not getting it all done. But when I make a Have-Done list, I can take pride in my accomplishments, no matter how big or small.
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On Miscarriage, Part 2

Yesterday I told Part 1 of our story on miscarriage. If you did not read that, please take a look at it first, and then come back to finish today’s post.Years passed before I realized that I felt “okay” about having lost that baby. Not that I was glad about having gone through a miscarriage, and I was never really overly sad about the situation, but I realized God was using that story in my life to help others, and I was okay with that.In 2009, through a series of events that I didn’t even understand at that point, I was reunited with an old friend who used to go to our church. We’d always been pretty close with her family, but she’d sort of “fallen off the grid” and I didn’t hear much about her - although I realize I didn’t ask a lot about her either; seems it was mostly around holiday times when I’d hear about her.One day she showed up at church. It took a bit of time before we realized why she had come back to church. She was expecting a baby, she was a single mom (although the baby’s dad is very involved) and was wanting to get things right in her life. She came back to church seeking out some support that she knew she would find through people at church.Because she & I knew each other over the years, and because she felt comfortable talking with me, we got close as her pregnancy went along. Since I was homeschooling, it was easy to help her out with transportation to/from doctor appointments, to answer pregnancy questions, and to just be a friend to her.

She was due in February of 2010, toward the end of the month, I believe. Valentine’s day came and I remember her talking about how much she’d love a Valentine’s day baby - that her soon-to-be-born son would always be her special valentine. Well, her sweet boy wasn’t born on Valentine’s day, but I can tell you that he is her valentine for sure - not just on February 14th, but every single day of the year. She is in so much love with him, as she should be!

One morning, in the EARLY morning hours, I got a call from a friend of my friend, telling me that they were at the hospital and this baby was coming quickly! In my half-asleep state, I called her friend back just to check that she really *had* called me. The friend said, “Yes, I called you. Do you hear her screaming in the background?” I still chuckle at that! :)

I got up & dressed and got ready to head to the hospital to welcome sweet little EJP into the world. Somewhere along the drive it occurred to me that the date was February 19th. The date that was my “expected due date” when I had first looked to find what might be my due date.

February 19th. A day that had been attached to some sadness in my own life.
God brought Amy back to church and into my life. We talked through so many issues of pregnancy, childbirth, parenting, and so many other things. I have loved her little guy since way before he was born. And while I never got to have my child on February 19th, 2002, God gave me a special gift gift 8 years later, on February 19th, 2010.
He has just turned 2 years old and is absolutely adorable! I had originally intended to post this 2-part series on Feb 18th & 19th, but as the dates grew closer, I didn’t want to detract from the celebration of his life because his birthday is for celebrating him!
Happy birthday, EJP! I love you bunches! Your life is a precious gift to all who know you. Remember that your mommy loves you very much, and she is awesome! And like I tell my own kids, “Jesus loves you more than your mommy ever could!”
Baby E with the presents my kiddos couldn’t wait to buy him!
E and his beautiful mom, my friend, Amy
Me snuggling with my buddy
Almost 2!
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On Miscarriage

magnolia2Sometimes we wonder why things happen - hard things, that we didn’t wish for and would rather not have happen to us. We wonder why God allows pain in our lives and what good might ever come of it. We all have stories like that, but I wanted to share a particular one with you.I’ve shared this story with some before, but not with the addition that will probably be Part 2 of this post. It’s a beautiful story with Part 1 here, recounting the tough stuff. In Part 2, you’ll read about the beauty that only God can orchestrate to remind me how much He loves me, and how wonderful life is.

{If you know me personally, please do not discuss this post or others related to it, with our kids.
I want to share this with you, adult to adult. Thank you.}In April, 2001, our oldest son turned one. He was such a delight at that age (still is!) and I was in love with “mommy-hood”!
In May of 2001, we found out we were expecting Baby #2. We were excited! It was not the ideal time to have a new baby, but then if you wait until “the time is right” you may never expand your family. We looked ahead to having 2 kids relatively close in age, and I thought that would be a wonderful thing! I read the baby books, trying to find my expected due date. February - and to be more specific, February 19th. These things are never exact (and as it turns out, my babies have never come within even a week of their projected due date…silly little kids!), but I liked the idea of having a “target date” in mind.
In late June of 2001, we lost Baby #2. It was confirmed via ultrasound at the very end of June or early July. I had just gotten to 6weeks, so I was not pregnant for long. I’d only known that I was pregnant for a couple weeks. Even so, there were many nights when going to sleep was tough - when being in the stillness, with my own thoughts, was just too much, and the tears came.

Ten years have passed since all this - almost eleven now. I have no idea who that child would have been in our family: Son #2? Daughter #1? I’ll never know, this side of Heaven. I wanted to know, at first. Now, all these years later, it’s ok that I don’t know.

There are times, when all is quiet, and a million thoughts are not swimming through my mind, when I’ll still wonder what our family might have been like, if we’d been blessed with that child’s life outside the womb. And in those times, there is always peace. I think it’s God’s way of letting me know that truly, His plans were the best.

Since that miscarriage, I’ve met many other moms who have suffered one or more miscarriages. Compared to some, my loss was quite simple - moderately painless physically, taking place very early in my pregnancy. No one discounts the mental and emotional toll this took, but I know others have had much more trying situations. I’ve been able to share with other moms going through this, that I can relate - that I’ve been through the same thing, even though circumstances are different. Often, it helps to know that someone else understands. I have tried my best to be supportive of others in this situation - to pray for, encourage, check on, love them. I’ve worked to listen, to let them cry, to hold a hand.

Through those situations, I’ve thanked God for allowing me to use my experience to help someone else. Miscarriages are not as taboo as they used to be, but it’s still not something that people openly discuss, so finding a listening ear can be tough.

Each year, on February 19th, I take a moment - just a moment - to remember that we had a baby who would have joined our family around that time. It’s always with a twinge of sadness that I remember we lost one, but there is always peace.

For many years, my story ended there. And honestly, it’s a good story, as it sits right here. There are some more details that are not here, because they are more personal - quiet chats with Tim, a very kind doctor, a special gift that occurred, despite knowing we’d lost our baby. But the story, as it is here, is a wonderful story about how God gave me opportunities to help others who have struggled through miscarriage as well. I’m grateful for those opportunities and for others who reached out to help me as well.

But the story doesn’t end there. This story, right here, makes me happy.

The rest of the story? A matchless gift! Come back to read the next segment tomorrow.

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A Different Kid

From the psychologist who evaluated Picasso, December 2010 (14 months ago):

*Does not seem comfortable in his body.


*Drew a picture but no ground line; his drawing isn’t grounded & that means he doesn’t feel grounded.


*Lacks eye contact


*Body seems very weak.


We ran into the same psychologist yesterday while at therapy. He was there to do an evaluation for another family and so I interrupted Picasso’s session so that he could say hi. Oddly, despite all the work our guy had to do with the psychologist, he really liked him! Hence, the interruption to say hello. After a 5-minute conversation, this is what he had to say:

*Amazingly comfortable in his own skin!


*So glad to hear that he’s including the necessary ground line in his drawings.


*Wow! That eye contact was awesome!


*Look how strong he is!


What a difference 14 months (and a lot of therapy!) can make!
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Life

I came across a quote while online tonight. It was not credited to anyone, so when I don’t attach an author, that’s why.

The quote got me thinking - and I think I agree. (Although, I’m really not very philosophical; I’m more of a “face-value” kind of person.)

Click on the picture if you want to see it larger.

So there it is. I have a lot of other thoughts on this, based on my religious background. But as it pertains to this particular quote, people I’ve talked to in life don’t seem to be looking for a “philosophical” reason for life so much as they seem to want the experience the fullness of life.

Any thoughts? I’d love to hear your perspective.

Photo Source

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Hearing Less

We took Picasso for an appointment with the audiologist in December & went back at the beginning of January to finish the testing. I have to say, out of all the appointments we’ve been to, I was least satisfied with this one, and hoping for more concrete results. I won’t start about all that was “not right” about this, as the list is long.

However, we got ONE positive bit of help out of this evaluation. Well, two. One - there is nothing wrong with his hearing. And two - We should try assisted listening devices in large crowds. Church is usually the only place we’re in large crowds (although, I could see this being beneficial at the grocery store and mall, etc.). This morning we plugged into the sound system at church and had Picasso wear some headphones for the time he was in church.

However, in order to get to that point, we spent a week at home, preparing him. We explained (again) how his ears work differently than ours. He seems to hear all sound evenly and cannot differentiate between noises he hears, and in a group of about 150, this is REALLY difficult. Imagine hearing everyone talking, taking off coats, shuffling in seats, etc - 150 sounds at the same time. It’s no wonder he’s exhausted when we get home from church. So the thinking was that the headphones would help eliminate some of the extra sounds around him, and keep him focused on what was hooked up to microphones - in other words, help him to focus on what he *should* hear, rather than focused on all he *can/does* hear.

So today, we plugged into the sound system and sat in the back row. Usually in church, we sit near the back, in case there’s need for a “quick getaway” / meltdown that necessitates a quick escape. He often will “hide” on the floor with a coloring book or paper to draw with. Even if he stands up to sing with us, it doesn’t last long and he quickly retreats to the safety of the floor.

This morning he sang the first song, shook hands with people, sang another song, and parts of others. He commented several times how quiet things were and how much better things seemed. But the singing - I hear him sing a lot at home, and I know he sings in some of the smaller group settings he goes to (Sunday school, children’s church), but this was such a blessing!

We’ll continue this for the next few weeks, and see how he’s feeling. I’m grateful that it was a great first try this week!

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When She Sleeps

Our little daughter often lives up to her name, “Princess”. 

See? A crown, some jewels, a royal pet (dog, of course!)

We often have many fun conversations with her - about princesses, and magic wands, and beautiful princess slippers, and ball gowns and … you get the idea.

Last night, when I went to tuck her in, I was leaning over her bed saying some of the things I often whisper in her ear. Now sometimes, she’ll wake up & respond, or we’ll snuggle on her bed for a bit. She loves that and makes me promise to talk to her just a little before I go to bed at night. I promise, but I will whisper, hoping she won’t wake up but will keep sleeping quietly.

Last night, as I covered her up, and rearranged the many - too many? - stuffed animals and blankets and books and slippers and robes and pillows, and … you get the idea … that she had in bed with her, I started my “nighttime conversation” with her.

I love you.
Sleep well.
Stay warm.
Only Jesus loves you more than I do.

She rolled over but had not woken up so I was pretty sure I was successful in conversing without waking her up. Hooray!

Her water bottle was empty so I took it to fill it up (well, really only about one quarter of the way full because she wants water but never drinks much).

When I came back, I tucked her water bottle back into the little pillow she has set up to hold it. I kissed her one more time. I felt that it would be safe to tell her one more thing because she had stayed asleep while I tucked her in just a moment ago.

One more kiss for her, along with, “You’re the prettiest girl I know!”

Eyes open, big hug and kiss.

“Thanks, Mom!”

And with that, back to sleep.

Ahh, the life of a Princess…Our Princess.



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In Search Of…

Last year was a year that rocked our world - almost literally. I’m sure you’ve heard someone say something like, “She rocks my world,” or “You rock my world,” - meaning that they make your life so much more amazing.

That’s not the world-rocking to which I refer.

What I’m talking about is more like an earthquake - the world rattles and things get shaken up. Yeah, that’s what I’m talkin’ about - last year our little world got shaken up. I’ve never been to more appointments in my life. And if I remember correctly, not a one of them was for me. 3 kids went to 12 appointments with the pediatrician, 11 or 12 dental & orthodontist appointments, several appointments to the eye doctor, therapy - and then *more* therapy, developmental pediatrician, audiologist, to get blood drawn. And those are just the ones I can remember on the spur of the moment. We met new therapists, experienced different doctors, had more things to worry about than any other year before.

I’m tired. That’s actually a step up from exhausted, which was a step up from “can’t-put-one-foot-in-front-of-the-other-one-more-time.” Tired is not too bad!

And then came the new year. I knew I wanted to tackle this year differently - be more focused rather than feeling so reactionary. I have plans for this year. I plan to do more than “exist to drive to the next appointment”. I’ve planned things I want to do. No real big plans, but last year, I gave up on plans.

I’ve lived through the ups & downs and ins and outs of the last year.

As I consider the year ahead, as I’ve made a few plans (because I’m still too scared to make “many” plans), I’m starting to realize a common thread among the plans.

Peace.

Every plan, every goal I have in mind (the few I’m starting with) deal with peace. I didn’t plan it that way. I planned to handle this year differently. But I didn’t realize that, I guess subconsciously, I was looking for peace. Not peace as in “the absence of strife” but more along the lines of tranquility.
I am so eager for the year ahead. I feel like I can invest more in all of my family, not just in the one who needs everything. I think because we tackled most everything last year, there won’t be *as* much to do this year. There’s still therapy, there’s an IEP meeting soon, a doctor appointment in the spring, plus stuff for my other two amazing children. But this year, I know that it won’t be as hectic as last year.
I’m not planning any big projects. I’m planning to light a candle, drink a cup of tea, knit a little more, listen to some music, laugh a little more, and hopefully spend more time with friends. I’m planning to sleep more than 4-6 hours each night.
I’m searching for peace because last year it was hard to come by. I seem to be seeking it out without even realizing it. I’m looking forward to a dramatic change of pace. I realize this year won’t be easy and things will come up that I’m not yet prepared for, but I’m planning for peace.
Grab your favorite mug, pour some coffee or tea, sit down, put your feet up and join me. I could use some support in this journey. You’re with me, right?
Let’s start here: Islesford Dock, on Little Cranberry Island, in Bar Harbor, Maine. This is one of my favorite places - Tim & I have been here twice. You get there by boat, have a delightful dinner and head back as the sun is setting. It’s perfect.
Photo: Mine.
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Two Years

It’s been just over two years.

We spent 5 years asking all the right questions, but we didn’t get any answers. Or we got wrong answers.
*Parent Better
*Teach the Rules
*Punish Inappropriate Behavior
*He’s being mean to his friends and you need to do something about it
*He’s not playing appropriately
*And from a “professional” at his school: This is what we think is wrong with him, and you need to probably treat him as such, even though you’ve *never* had a medical/psychological professional agree with you on this point.

And so we got answers. We paid out of pocket for an OT evaluation, from a trusted and respected center, which led to a lot of answers. Sensory issues. Many of them. Over-sensitive in some areas, under-sensitive in other areas. Issues typical to kids with spectrum disorders, but also very much a stand-alone issue, not related to Autism Spectrum Disorder.

Know what the school said?

“This can’t possibly be right; we’ve never heard of this before.”

And so my kid continued to struggle there for a few more months.
We fought almost daily, he and I.
I didn’t understand that he was on edge all day long.
I dreaded pick up time. Every day. There were many negatives. There were rarely positives.
I should have pulled him as soon as I realized that they weren’t going to work with me…but that would have been more detrimental to him.

We pushed more & just recently got him a diagnosis of Asperger Syndrome.

Know who TRULY agrees with that diagnosis in the medical & professional world?

No one.

That’s right. Not *one* person in the medical or psychology field truly agrees with that diagnosis.

Why does he have it?

Because it’s the best diagnosis to make sure that he gets the appropriate therapies he needs.
Because while it’s not “perfect” it definitely fits.
Because while it doesn’t “perfectly fit”, it covers the issues with which he struggles.
Because his “quirky little habits” are just quirky enough.
Because he meets a good bit of the criteria for that diagnosis, but definitely not all of it - at least, not according to the medical and psychological professionals…PROFESSIONALS.

While we’ve fought medical people, knowing there was something “off” about our son, the biggest fight came from a school. A preschool.

It’s been 2 years since we began the journey of getting help for our son.
It’s been (just over) 2 years since we found the perfect doctor for our son.
It’s been 2 years since those who had an opportunity to help our son, chose not to understand or help our son as well as they could have.

It’s been 2 years since I learned that advocating for our son would almost always mean not backing down when someone disagrees, and pushing until someone listened.

Our son is thriving today, because we listened, from the beginning, to our own hearts. Because we kept asking questions in hopes of getting answers. And when we got answers, we didn’t say “That’s not possible because we’ve never heard of it,” but rather, “We’ll try whatever you suggest in hopes of helping our son.”

I’ve learned that helping a child always benefits the child more than trying to get them to conform to your standards and ideals. Always.

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Questions

Ok, Sara, just for you!
What’s the best dessert you’ve ever eaten….care to share the recipe? – What can I say I have a mega sweet tooth and I’m always looking for new sugary good recipes to test out!
Not sure if it’s the *best* I’ve ever eaten, but it’s delicious! Hot Fudge Sundae Cake
Would you rather have 5 cute non name brand tops or bag costing $20 each or 1 name brand top or bag that costs $100?
Hmm…Could I have the cash and go out to dinner w/ Tim? But if I had to pick, 5 items at $20 each.

Are you jealous of the amount of technology kids today have available to them, the world at their fingertips… or are you thankful you grew up in the pre camera phone, every detail of your life posting to FB, no GPS, no internet on hand / no online shopping, no smart phone days?
Not sure I’m “jealous” of the technology, but internet would’ve been so much easier than Encyclopedia Brittanica! Trying to find the happy mix of technology vs a not-so-tech life
First Concert you attended…did it live up to your expectations?
Not sure - something with the youth group at church. Was pretty cool!
Coffee or Tea…or do you go straight for the caffeine IV like I do?
Coffee. Tea in the afternoons or evenings, maybe. 
Favorite Disney Movie…or Dreamworks, I’m not picky, just nosey ;p
Ummm…Hmmm…I liked the Cars movies (are they even in one of those categories? LOL)

Playstation, XBox, Wii, or strictly phone?
We haven’t gotten gaming systems for the kids yet, other than their DS’s.

Do you leave the water running while you brush your teeth? (If you answered yes can I BEG you to stop…it’s a huge issue of mine…don’t laugh….Water is so precious we shouldn’t waste it)
No, I don’t. You’re welcome! ;) 
Flats or Heels?
Flats. I can’t be bothered. Plus, I’m rather clumsy. LOL
Favorite place to vacation, or place you’d love to vacation some day?
Bar Harbor, Maine. Also, Prince Edward Island was pretty amazing! 
Wise Words – Share a quote or tiny tidbit of info that’s pretty genius
We are what we repeatedly do. Excellence, therefore,
is not an act but a habit.

Aristotle
If the wind will not serve,
take to the oars.
Latin Proverb

“With ordinary talent and extraordinary perseverance, all things are attainable.”

I am only one, but still I am one. I cannot do everything, but still I can do something; and because I cannot do everything, I will not refuse to do something that I can do- Helen Keller

Thomas Foxwell Buxton

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