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The Twins

I wanted to share with you about the twins, who are not really twins. In our family, it’s our middle child, Picasso, who has the Autism Spectrum diagnosis. Our first son is four years older than Picasso, and our daughter is a little more than two years younger than Picasso. One of the more obvious issues with developmental delays is that the child does not always “act their age”. This is usually because their developmental age is very different than their chronological age. This means that a child who is, say, 8 years old chronologically, may only be 5 or 6 years old, developmentally. It’s unfair to them to expect them to act their age, because they truly cannot.

That’s not what this post is about, though.Picasso just turned 8 (updated - now 9), and our little Princess will be 6 (updated - will be 7) in September. Some days they get along well, other days they do not - typical. However, girls often seem to mature more quickly than boys and so Little Sis sometimes seems older than she is.

With an 8-year old (9-year old) who has a developmental delay, and a 5.5-year old (6.5-year old) who is relatively mature and often seems a little older than her age, it sometimes seems as though we have twins. Interestingly, we almost chose a name for our daughter that is very similar to Picasso’s real name. Someone commented that people might think they were twins if we named them similar names. After talking about it, we found that we agreed & ended up choosing a different name for our girl, which I LOVE & about which I have no regrets. On days when I find myself teaching them similar tasks (how to make your bed, change your sheets, etc.) I think about what it might be like if we had named them those similar names.

They’re best friends…they’re each other’s “security blanket”…

they’re the one the other looks for first thing in the morning; one climbs out of bed and into the other’s bed if they are scared or if they think the other one needs comforting.

It’s kind of like having twins, without actually having twins.

 

 

 

 

 

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Gratitude

I’ve been working on a project lately, that I wanted to get down “on paper” and to share with you. I often get caught up in the day to day of life - homeschool, therapy for our son, music lessons, housework, church activities for all of us, etc. All of these are great things, but I sometimes get caught up in the “doing” of the necessary things rather than enjoying the moments of life.

A few years ago, Tim and I had the opportunity to take the Love Languages test, based on the book by Dr. Gary Chapman, The Five Love Languages. Tim’s top love language is Words of Affirmation. This means that he feels love most when I speak kindly to him - more so than when I get him a gift, or spend time with him. My top love language is Quality Time, meaning I feel most loved when he spends time with me. It’s odd for me to try to think of feeling loved based on the words someone says to me, as it’s not the way I understand love. But it is the way Tim understands love. As the day to day can seem overwhelming at times, Tim is the one I need to guard against not taking for granted, and that means focusing on the way that he feels loved.

Source

I’m also reading 1,000 Gifts by Ann Voskamp. She has a beautiful way of detailing the small things, which are the things that bring her joy. She points out that maybe the extent of our joy is based on the depth of our gratitude.

Gratitude. How could I effectively express my gratitude to Tim for who he is? Yes, I talk to him often, and say kind and loving things to him, and that’s very nice, but I was looking for more. I wanted it to make an impact in a larger way than by just *saying* words.

Source


Through talking with a friend, I stumbled on an idea that I thought just might work. Words. Visible words. Words that can linger after the sound of my voice has stopped. But I didn’t want to just be thankful for what he does, I wanted to be thankful for who he is. I was telling my friend that it’s hard for me, sometimes, to understand how to differentiate what he does from who he is. I can say, “Thanks for loading the dishwasher,” but that’s focused on a task, not the person. My friend’s response really helped clarify this for me. She said, “Who is he being, in your life, when he’s doing something nice for you?” Ahh! That made it so easy for me to begin to think through many situations and see the need he was meeting. For example - when filling the dishwasher, he was being helpful and kind and giving of his time. When he makes my coffee each morning, he is being thoughtful, considerate, loving.

Some time back, I bought a few white boards. We were using them somewhat regularly for the boys’ school work, and so I purchased some extras. Once I understood how to differentiate between the actions and the need met in my life, it was so easy to start to fill a white board with words that give love and life to my husband.
This is the top half of the white board that is dedicated to words of affirmation for Tim. It’s focused on gratitude for who he is. Occasionally, I may add in something special that he did, but I want the focus to be on who he is.
What happens when I get to the bottom of the white board? Does my list end? No. That’s the best part - I’ll be taking a picture of each board as I fill it. The pictures will go into a book that he can keep. I’ll be able to look through it and think of the many times that he was resourceful, or patient, or genuine; I can recall times he prayed for me, provided for me.
And the sweetest part of it all (at least, in my opinion) is that I catch him peeking at the board - seeing if I’ve added new words. This challenges me to keep at it - to spend time each day focusing on who he is - being grateful for him. Ann Voskamp seems to have it right in her book: the joy seems to soar as my gratitude increases!
Linking up again over at Jenny’s blog again this weekend. School is almost finished for the year - hooray! - and I’m hoping to get back to a more regular writing schedule. Wishing you all a great weekend! If you need some fun ideas for easy Memorial Day/Fourth of July crafts, check out this post for some easy ideas - perfect for kids of all ages!
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Self-Advocating

It hasn’t happened often, at least not as clearly as it did tonight.
We’d gathered for Picasso’s birthday celebration. Our family is pretty famous (infamous, maybe?) for having birthday parties for someone on any day except their birthday. It’s a rare thing to actually get to celebrate ON someone’s birthday. The great part is that we get to celebrate together, and then we have a small little something for the birthday person *on* their birthday here at our home - maybe brownies, maybe cupcakes or cookies. So while his birthday isn’t until next Friday, this was the only opportunity that we could all easily get together to celebrate.
Tonight we were having fun, everyone chatting with someone else at the table when it happened. He was completely serious as he spoke. I wasn’t sure just how to react. I wasn’t sure if he’d start laughing, crying, yelling at us, or just keep on going. It turned out that he just kept on eating his cake & ice cream.
So while we were all talking, he said, “Hey, why is everyone talking all at once? I can’t handle it. I have sensitive ears!”
That right there would be his therapies ALL paying off! He’s recognizing his problem, speaking nicely about it, and speaking up for himself. What a joy to see him starting to recognize what he needs and speak up for himself in a proper way. He didn’t yell, he didn’t hide, he didn’t run away, he didn’t have a meltdown; he just spoke up clearly to tell us what he needed.
I think that was his birthday gift to me!
Happy almost-birthday, little dude! Hard to believe it’s been almost 8 years!

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Telling My Story in Photos

I’ve been following Jenny’s blog for some time now. I just recently thought to find her blog on Facebook. She’s hosting a photo link-up this week, with 5 prompts for photos -
1. Your morning routine
2. The contents of something you carry around on a frequent basis
3. Something you pass daily that you have never taken a picture of
4. Your happy place
5. Someone who makes you smile.
I thought this sounded fun so I got to thinkin’ and snappin’! You’ll find my photos for these 5 prompts, below.
First - my morning routine. Coffee & my devotions. It’s important to me to start the day focused on the right things. Devotions each morning help with that.
Second - the contents of something I carry regularly. This is the bag I take with me to my son’s therapy each week. And this is what’s currently in it - 4 pens, someone’s piece of “gold”, sunglasses, a hair clip, scarf I’m knitting for my daughter, Excedrin Migraine, a small part to a Transformer, and Ann Voskamp’s One Thousand Gifts (if you haven’t read it yet, do!)
Third - something I pass daily but hadn’t taken a picture of. Our bed. Last Christmas, we added the white lights around the headboard. The kids love it and so we’ve kept them up to enjoy year-round.
Fourth - my happy place. We had a great time on our vacation to the Outer Banks over Spring Break. We saw a lot of things and had so much fun with the kids! We particularly enjoyed it because it was so quiet while we were there.
And finally - someone who makes me smile. Tim & I are coming up on 13 years of marriage and I love, love, love him!
Thanks, Jenny, for a great idea. It’s so much fun to document different parts of life! Have a great weekend, everyone!
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The Day I Prayed to Not Give Birth

Eight years ago, Tim & I were expecting Picasso. We had been told that he would quite likely have some serious health/life issues, but further testing seemed to indicate that might not be the case. We didn’t know what to expect. A few months before he was due to be born, Dad was diagnosed with cancer and was having a lot of tests and doctor visits.

The back story: He was stung by a bee in September 2003, and had to go to the ER because his tongue started to swell, making it difficult to breathe. He was okay after some treatments, and the ER docs recommended he see his family doctor to follow up. His family doctor recommended a colonoscopy and an endoscopy because he was the right age for these tests. The endoscopy found the *very* beginnings of cancer in his esophagus. Because they found it so early, they did not know how to treat it. His doctor looked for someone to help determine the best course of action. The only oncologist available to help Dad’s doctor was the head of oncology. Coincidence? Nope. After discussion with the head of oncology, his doctor decided that he should have surgery which would probably take care of the cancer.

So on May 12th, 2004, 3 days before my due date, he had major surgery to remove the cancer. They took out his entire esophagus and re-shaped his stomach to become his esophagus and stomach. Dad would likely be in the hospital for at least a week. We started praying for Picasso not to arrive on his due date, since we hadn’t been able to get him to decide to be early. :) (Anyone else ever pray for their baby to arrive up to 10 days late?)

It was a long time of waiting…waiting for the surgery to be finished (many hours), waiting for Dad to get out of ICU (several days), waiting for him to be well enough to go home. He left the hospital about a week after he went in, and we started to pray for Picasso to decide to make his grand entrance. It was almost another week after that before we welcomed him to the world.

I think that there was evidence of God at work, even in Picasso’s VERY late arrival. I had an infection and had to be re-hospitalized one week after he was born. Tim had to be at work the next day, and so Mom came to stay with me at the hospital. Since the baby was brand new, they had me take him along, so I needed someone with me to care for him. That still left Mozart, our oldest, who needed to be watched. Dad had now been out of the hospital for about 2 weeks. Because he was regaining his strength, and because Mozart is such an easy-going child, Dad kept him for the one long day that I was in the hospital. I was able to go home the following day, and Mom was able to go back to helping Dad get well.

2 weeks after Dad’s major surgery - welcoming his second grandson into the world
On the left, our son - “Picasso”. On the right, my dad - pictured above.
Love that they look so similar!
(And act similarly, and talk similarly, and think similarly, and wear their glasses similarly…you get the idea)
Eight years later, everyone is healthy and doing well! The month of May, 2004, is a memory - it is one that our family can look back on, and realize that God is never late. He is always on time, and HIS time is always best. If God cares enough to clothe the lilies of the field, and feed the birds of the air, we can have complete faith that He will meet our needs…in His perfect time!

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A New Week

It’s Sunday night - the end of the weekend. Most people don’t look forward to Mondays, but in this house, we love them. When you’re as reliant upon a schedule as we are (due to Asperger Syndrome, homeschooling, more than 1 child with more than 1 activity), a weekend is lovely, but can be stressful because of the change in routine from the normal schedule. We love having Tim home on the weekends, and we love our activities at church with friends and family, but we thrive on our Monday through Friday routine.

After 13 months of therapies scheduled at approximately the same time, Picasso is finally internalizing them. Finally. 13 months. Mm-hmmm….it’s taken a long time.

He’s now starting to realize that Mondays mean an hour of speech therapy. He’s beginning to understand that Wednesdays are his days of 2 therapies - Occupational Therapy and Social Skills Training. It’s the end of the school year and *now* it’s clicking in his mind. That’s ok, though - he’s always operated on his own time schedule, not for a lack of trying on our part. That’s all a part of the developmental delays - what should take kids his age just a few days or weeks to understand, takes months for him.

I’ll admit - it’s difficult to work day after day after day on the exact same task. But when it all comes together, it’s a powerful thing to see. It’s so exciting to SEE things “click” in his mind. All of a sudden a guy who struggled turns into a guy who has a newly acquired skill and life gets just a little easier for him! He sees the growth in his own life at times and it’s exciting for him!

This week we have a pretty normal schedule in terms of the online classes and the regular classes. We have a few extras added in, and some fun things as well. The end of the school year is SO close! I think I’m more excited about it than the kids are - homeschooling takes a lot of time and energy. But it’s so rewarding!

So I’m ready to embrace a normal week! We’re looking forward to some time with friends, some activities at church on Wednesday night, a visit to Fraunt Sharon, our favorite pediatrician, at the end of the week, and hopefully zooming through the rest of the school year!

Hope you all have a great week!

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Early Mother’s Day Card

On Tuesday, Picasso had an online class with his teacher. Each student was supposed to share something they’d learned, something they hoped to learn next year, something they’d made/enjoyed this year, and one or two other things. I wasn’t entirely sure how it would go as the thought of having to share seemed to be causing him some serious anxiety. However, when it was his turn to share, he did an excellent job. He seemed genuinely pleased by all the kind comments that his classmates made.
The teacher then wanted to help the kids make a Mother’s Day card. I offered Picasso some plain paper, but he preferred the lined paper. He turned the laptop away from me & told me I wasn’t supposed to watch or read the card until he said I could - which was later that night. When I got to read the card, I asked him if he came up with the words or if the teacher had helped. He said that he chose one from the top and one from the bottom. I think that meant she might have had a couple different ideas on the page and they could pick from them. So while the words are not originally his, they are perfect. I love that he included the date - and even though it’s not yet May 13, 2012, I was allowed to go ahead and read the card.
{name smudged out for a little privacy}
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Wordless Wednesday

Trying my hand at making a photo collage this week - I like the way it turned out!
Linking up with:

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